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More important than that are the lives we are supporting.

вЂњIt will be the executive director of an organization with $1.5 billion in investments. вЂњItвЂ™s a very important job,вЂќ DeBeaugrine said of the next leader. вЂњIвЂ™m confident we are going to be up to the task ahead.вЂќ вЂњEverybody who has accepted an appointment to this board understood that going in,вЂќ said DeBeaugrine, a former director of the Florida Agency for Persons with Disabilities who also has been a longtime caregiver for a disabled family member. Would NICA withhold the disbursement of the parental award if a parent or legal guardian refused to sign the Perjury Statement?вЂќД¬arter asked Shipley to вЂњimmediately discontinue the requirementвЂќ and to notify families that the perjury statement was no longer required. In a June 21 email obtained by the Herald, Carter told Shipley that вЂњto require the parents and legal guardians to sign a Perjury Statement in order to receive the award creates stipulations that are not in law. The statements, which invoked the specter of criminal prosecution, infuriated some parents. Though the Legislature had imposed no conditions on NICA families receiving a $150,000 cash supplement, Shipley at first insisted that parents sign a вЂњperjury statementвЂќ - an attestation, required by Shipley for all invoices, that the signer was not committing fraud - before they could claim the benefit. Patronis also appointed his consumer advocate, Tasha Carter, to represent families in disputes with NICA administrators over care and services.Д«ut even after lawmakers appeared to reproach Shipley by including a statutory provision requiring the program to operate вЂњin a manner that promotes and protects the health and best interests of children,вЂќ Shipley continued to anger both parents and regulators. Sink had criticized the program as a вЂњscamвЂќ and accused NICAвЂ™s leaders of having misplaced priorities that emphasized the financial growth of the program over meeting the needs of families. Ron DeSantis signed the legislation into law in June.ДЄlex Sink, FloridaвЂ™s chief financial officer from 2006 to 2010, said she is encouraged by the changes at NICA.

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The series showed administrators spent thousands in legal fees to avoid spending hundreds for care.ДЄfter the series published, Florida lawmakers passed sweeping legislation to reform the program, delivering new benefits and protections to the more than 200 Florida families with children covered by NICA, including mental health services, representation on the board of directors and retroactive compensation of $150,000 for parents whose children are still alive and in the program. The investigation by the news organizations, called Birth & Betrayal, detailed how NICA had amassed nearly $1.5 billion in assets while administrators often refused requests large and small - for medication, medical equipment, wheelchairs, therapy and in-home nursing for children with breathing tubes. In exchange for that loss, parents were promised вЂњmedically necessaryвЂќ and вЂњreasonableвЂќ medical care for the life of their children. Under the NICA statute - one of only two such laws in the nation - parents lost the right to sue their doctor or hospital under certain circumstances when their child was born with severe brain damage from oxygen deprivation or spinal injury.